People with HS tell their stories.
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Living with HS isn’t easy, but there’s a chance you’ve learned a lot about HS, and yourself, along the way. And that’s something worth sharing with the hidradenitis suppurativa community.
From serious to silly, from functional to fun—these posts were shaped by the experiences and insights of people like you with HS. We want to hear about your HS battle too. Comment below or share your own insights on HS for others to view and share.
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Disclosure: This is a website provided by AbbVie for sharing information about living with Hidradenitis Suppurativa (HS), a chronic inflammatory skin condition. This page is intended for US residents aged 18 and older only. Some of the content contained on this section of the site comes from members of the public or third parties and does not necessarily reflect the views of AbbVie, and no endorsement or approval of their content should be implied. Users will not be able to communicate directly with one another via this page.
AbbVie encourages HS sufferers and their advocates to share the story of their own journeys with HS via the submission form on this website. This content may then be published to this web page for others to view and share. Due to the nature of the regulated industry under which this site is governed, any content shared will be subject to the following guidelines:
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Kerry's HS Story
Kerry talks about being misdiagnosed for years and how HS affected her role as a mother.
TRANSCRIPT FOR KERRY VIDEO:
[Graphic Opening (Words appear over black brick background)]
[Elizabeth:] Bogus Stories
[Sterling:] Bad Solutions
[Kerry:] Being Silent?
No. No more BS about HS.
[Kerry:] My name is Kerry, and I am from Ireland. I have two gorgeous boys—Kian, who’s 5, and Kieran, who is 9 months. I suffered my first symptoms when I was 15. It’s called hidradenitis suppurativa: lumps underneath the arms, groin, and underneath the breasts. It took me a while to go to my mother, 'cause I had lumps down, you know, in my groin area as a young girl. Um, but they got so painful, I didn’t know what to do. So, I went to my mother and then she took me to my first gynecologist appointment. This gynecologist, um, took one look at me and looked down there and looked at my mother and said, “Uh—it’s herpes.” I’m not even sexually active! Like there’s no possible way that that is herpes. And the results came back—and um, of course: negative. And then all through my twenties, I kept going to doctors, looking for answers. And the lumps started getting really, really bad and running after little ones, it’s, it’s, it’s all hands-on. Like, there was many times that Chris or my mother had to pick them up. Even going in and out the car with both arms. I couldn’t even lift my arms. It was very trying. I had to take my time. They understand. Kian, my little fella, he’s such a big help. He’s only 5. He shouldn’t have to see mommy like this. He shouldn’t have to pick me up. I should be picking him up, y’know? It’s tough. I cried; when I found out from a real dermatologist—she was the first person that told me, she goes, “I think it’s hidradenitis suppurativa.”And I’m like, Hidra-whaat? I had no idea what she…I was like, Can you please write that down for me? To have a name to it after 15 long years was…it was a bittersweet, you know what I mean? It was just almost like a sigh of relief, like I wasn’t going crazy or I wasn’t the only one. If a person’s out there suffering with unknown lumps and in pain, don’t give up. Go see a doctor. My family is my rock. We’re very close-knit. When I’m with them I’m not embarrassed. I’m me. I—I plan on taking this to the bitter end, you know what I mean? It’s not going to take me down. I have a lot of fight in me. I don’t have time for the BS about HS.