People with HS tell their stories.
Learn how they handle daily life with the disease.
NO MORE BAD
These resources can put you in touch with current HS research, offer lots of workable ways to live a healthier lifestyle, and connect you to vibrant HS group forums.
Today, more and more research is being done on HS as awareness increases. These sites will help give you even more information about the disease.
HEALTH AND WELLNESS SITES
These sites offer ways to change your lifestyle, with ideas for healthier eating, quitting smoking, and reducing daily stress.
Check out some of these groups. You’ll find others dealing with some of the same HS issues that you face. You might learn some new tips and share a few of your own.
Elizabeth's HS Story
Elizabeth tells of her history of flare-ups, her nursing career, and support from her parents.
TRANSCRIPT FOR ELIZABETH VIDEO:
[Graphic Opening (Words appear over black brick background)]
[Elizabeth:] Being Secretive
[Sterling:] Bad Solutions
[Kerry:] Being Silent?
No. No more BS about HS.
[Elizabeth:] Hidradenitis suppurativa is—if I could put it in one word: it’s awful. I had a really nasty flare-up under my arm about the size of a baseball. And, it ruptured in class…there was pus and blood. I remember my classmates all saying, "Oh my gosh, what is that smell? It is so gross in here." And, I realized it was me. My name is Elizabeth, and I live in beautiful Tampa, Florida. I’m currently a nurse. I work in the emergency room at a local hospital. And I go to school getting my advanced registered nurse practitioner degree. I spend a lot of time studying; a lot of dedication to what I am learning. I first started experiencing symptoms of HS probably around 13 years old. I would get what I thought were pimples, just really bad-looking pimples, and they would be horribly painful. My parents knew, but that was all who knew. My mom took me to the dermatologist. The nurse comes in. I show underneath my arm. She says, “Oh my goodness, you have hidradenitis suppurativa. I know you have it, because I have it, too." And she walked over to me and hugged me and said, “I’m sorry, there is no cure.” So, I have this mystery illness that no one knows anything about. I’ve had doctors who have basically put the blame on me; that it is my weight, my lifestyle choices, that I caused this disease. I remember just feeling very alone and very scared that there was nothing that could be done for me. And I would have to live with this for the rest of my life. But I can’t just sit in bed all day long in pain and in misery and let this disease control my life. I love to keep an active social life. I love to go out with my friends and go to hockey games and go to the movies and go shopping. 'Cause I only have one life to live. If you were just diagnosed with HS, I think the message that I would have is to not lose hope and to find that doctor who knows about HS. I look at it now as a fight, and I am winning this fight.